Charity workers, a congressperson, UNC researchers and patients afflicted by a rare disease all gathered in the Carolina Club on Thursday evening to celebrate a grant from the Center for Disease Control and Prevention to help combat HHT.
HHT, Hereditary Hemorrhagic Telangiectasia, is a genetic mutation of the the blood vessels and affects around 70,000 Americans. It is a lifetime disease and an issue that U.S. Congressional Representative David Price cares deeply about.
The grant originated from the combined efforts of the charity Cure HHT and Dr. Raj Kasthuri, a professor at UNC and director of the UNC HHT Center. The political work was largely completed by the office of U.S. Rep. Price.
Cure HHT Executive Director Marianne Clancy said she and Dr. Kasthuri met with Rep. Price and his team in Washington, D.C.
"(Rep. Price) understood immediately how important (the grant) was and the healthcare savings that could occur with this project,” Clancy said.