Cooper Herman, an outgoing and energetic 1-year-old by all accounts, began complaining of neck pain in May 2009 while he played.
His parents worked until August to get a doctor to order an MRI.
After the results came back, Cooper was rushed into a 12-hour surgery to remove a golf-ball-sized tumor from the base of his brain.
Saturday’s “Rockin’ Run & Family Fun” in Chapel Hill will include games, a 5k fun-run, food, drinks and live music to raise money for Cooper and other families with children battling cancer.
While the 5k race will be timed for athletes, the emphasis is on fun, event spokesman Mark Sherburne said.
“The 5k race is a family-fun race, in that kids of all ages are welcome to attend,” Sherburne said. “They can decorate their bikes or doodle on their scooters or skateboards.”
After the race, former UNC basketball star Eric Montross will emcee the rest of the evening.
Proceeds will go to Super Cooper’s Little Red Wagon Foundation, named for Cooper.
His parents, Justin and Elise Herman, created the foundation in December with strong support from friends after meeting other families in waiting rooms and hospitals.