“I don’t know anything different,” she said. “It’s my normal.” Megan Crowley doesn't let her rare disease dictate her life. She has two degrees from Notre Dame and is working on a a third one in social work at UNC. After being diagnosed with Pompe at 15 months, Crowley's family was told she would never be able to walk or stand on her own, requiring 24-hour nursing care. Told she probably wouldn't live past her first few years of life, Crowley is refusing to conform to the odds she was given.